The world-wide naevus community is proud to announce the creation of NaevusGlobal.org, a website dedicated to improving the lives of those affected by large congenital melanocytic naevi. We are working diligently to provide a global informational and support network for people with large/giant naevi. Please check back.
Outcomes for Congenital Melanocytic Naevi, together with people with CMN, family, and professionals, tries to decide what domains and outcomes should be measured in CMN care (when someone visits the doctor) and in research. On the 21st of January, they are organizing an online consensus meeting to decide what outcomes are important. It is very important to them that everybody who would like to participate in this meeting has the opportunity to participate. More information available on the flyer.
In the ongoing search for expertise in congenital melanocytic naevi (CMN) two specialists in Italy have joined the ranks of the Naevus Global Scientific Advisory Council (SAC). We welcome surgeon Dr. Stefano Latorre and dermatopsychologist Dr. Rosalba Semeraro to the ranks of experts who see many patients affected by our disease.
Our friends at the International Association of Dermatology Patient Organizations, who put on the Global Skin conference in September in Geneva, have released their 2017 4th Quarter Newsletter.
In collaboration with member organization Nevus Outreach, Naevus Global Scientific Advisory Council member Dr. A. James Barkovich has just released revised and updated guidelines for using MRI to detect Neurocutanoeus Melanocytosis. You can download and view the new guidelines.
Our most recent newsletter (2017 October) is now available to view online. Download the Naevus Global newsletter.
The International Alliance of Dermatology Patient Organizations (IADPO) held their 2017 Global Skin Confernce 15-17 September in Geneva. If you want to find out more, download Naevus Global's report on the meeting.
Naevus Global held its General Assembly on June 6, 2017. Click here to download the minutes of the meeting.
The Scientific Advisory Council of Naevus Global has made a selection of seminal work from hundreds of relevant journal articles about congenital melanocytic nevi, neurocutaneous melanocytosis, and related conditions. Click on titles to read the abstracts or ask us for the full-text articles. Find out more.
Retired Nevus Outreach Chief Executive Mark Beckwith gives advice for starting a patient association based on his experience founding and operating the largest nevus patient association in the world. (Learn more)
Read tributes to those who have been lost due to a complication related to their congenital melanocytic nevus. (Learn more)